CMTA
search:
Home About CMTA Join the CMTA How to Contribute Media Room
Contact Us
Ask the Experts
Medical Alert
Publications
Daily Living Aids
Research
Events
Free Info Packet
To create a world without CMT stamp
Click here to buy STAR stamps and help create a world without CMT

 

Hot Links:

Join the CMTA!

CMTA "Circle of Friends"

CMTA Strategy to Accelerate Research

2008-2009 $350K Board Challenge

New on Parents' Page: I am Just a Mom...

New on Kids' Page: Being a CMT Kid

California Patient-Family Conference DVD

Site Reference Guide

 
 
 

6/26/2009: Participants Needed for PGD Study

An innovative study, funded by the National Institutes of Health, is exploring how couples who are at high risk for passing on a childhood genetic disorder (such as Charcot-Marie-Tooth) make a decision to use or forgo the procedure of Preimplantation Genetic Diagnosis (PGD).

The Principal Investigator, Dr. Patricia Hershberger is a nurse-researcher at the University of Illinois at Chicago, School of Nursing, and she is actively looking for couples who:

  1. Are at high risk for passing on a childhood genetic disorder such as Charcot-Marie-Tooth to their future children
  2. Have talked with their doctor within the past 3 months about using PGD to prevent the transmission of a childhood genetic disorder
  3. Have decided to: use PGD, forgo the use of PGD, or are still contemplating the use of PGD
  4. Are 18 years of age or older, and
  5. Are willing to discuss their decision experience either over the telephone or by e-mail

For more information about the study, please visit http://www.uic.edu/nursing/fertilitydecisions/PGD/index.html.

If you are interested in participating or would like to discuss the study in more detail, please contact Dr. Hershberger at phersh@uic.edu or call toll-free 1-888-330-2104.

 
 
   
Home Join Contribute About CMT Medical Alert Resources Free Information Packet
Ask the Experts Publications Daily Living Aids Discussion Forums Research CMT Database
Events Contact Privacy Sitemap
Charcot-Marie-Tooth Association 2700 Chestnut Street, Chester, PA 19013
Toll-Free (US Only): 1-800-606-2682 Phone: 1-610-499-9264 Fax: 1-610-499-9267
info@charcot-marie-tooth.org
© 2006 - 2010 Charcot-Marie-Tooth Association. All Rights Reserved.